What does terminal disease mean

what does terminal disease mean

Terminal illness

A terminal illness is a disease or condition which cant be cured and is likely to lead to someones death. Its sometimes called a life-limiting illness. Some people may use different definitions, so its important to ask if youre not sure what someone is saying or what it means. Jul 11, The Medicare definition of terminal illness and why it matters The Medicare program defines a terminal illness as one with a life expectancy of .

Which illnesses can be terminal? How long will someone with a terminal illness live? What kind of care will someone with a terminal illness doez What is terminal cancer? There is no set list of illnesses which are terminal. People who are terminally ill may have a single disease or a number of conditions. Examples of some illnesses which can be terminal include:. People with a terminal illness may live for terjinal, weeks, months or sometimes years. It can be difficult for doctors to predict how long someone will live for.

This can depend on how to write diary everyday diagnosis and any treatments they may termial receiving. No two experiences of a terminal illness are the same.

Other people may find that they have times when they feel better and times when they feel worse at different points during their illness.

Someone living with a terminal illness is likely to receive treatment and care which focuses on managing their symptoms and maintaining their quality of life. This is called palliative care. The aim is to make the person feel supported and give them a good quality of life, rather than cure their illness. People can have other treatments at the same time as receiving palliative care.

Palliative care aims to help the person be as well and active as possible, and it helps manage any pain or other symptoms they what does terminal disease mean have. People living wat a terminal illness and their loved ones may find that they need different types of practical help or emotional support at various points doee their illness.

Palliative care can involve psychological, social and spiritual support for the person who is ill and diseasw loved what does terminal disease mean. The palliative care team, which is a team of healthcare professionals looking after the person who is ill, can make sure family and friends receive the help and support they need.

Any kind of cancer can become terminal. Talking to a doctor what does terminal disease mean member of the palliative care team may help, as they will be able to advise on finding the mea treatment, care and emotional support. Terminal cancer is different to advanced cancer. Although advanced cancer is also incurable, people with advanced cancer may still have treatments which could help to prolong their termimal. They can also receive palliative care alongside their treatment. For more information on terminal illness, palliative care and the support available, you can call our Support Line onor take a look at our information on living with a terminal illness.

My wife, Sandra, makes me what swimming pool chemicals do i need. This information is not intended to replace any advice from health or social care professionals.

We suggest that you consult with a qualified professional about your individual circumstances. Read more about how our information is created and how it's used. Published date: 1 April Review date: 1 April Your gift could pay for one djsease of vital nursing care for someone living diseasd a terminal illness in the comfort of their own home.

This gift will provide nine hours of nursing support in someone's home through the night, bringing the expert care and comfort families need.

Your kind regular gift could help provide much needed support for families. Over the course of a year your gift could provide an entire night of care in what to do in lawrence ma home, helping them stay with their family. You gift will pay for a vital hour of nursing care from a Marie Curie Nurse for someone living with a terminal illness every month. Whatever you can give, your kind donation means people living with a terminal illness and their families can get expert care and support.

Home Diseaxe we are What is terminal illness? What does terminal illness mean? On this page:. Paul Nolan. About this information This information is not intended to replace any advice from health or social care professionals.

Related content. What are palliative and end of life care? Coping with change and uncertainty. People who can help. Single Monthly. What is palliative care? Find out diseaze palliative and end of life care and how they can help people with a terminal what does terminal disease mean. Learn more. Are you looking for help? Marie Curie Support Line. Call our Support Line on for practical and clinical information and support on all aspects of end of life and bereavement.

Regular support how to configure ports on router a volunteer. Visease can have regular dkes with a volunteer with our Check-in and Chat service.

Information and support. If you've been affected by terminal illness in any way, we're here to support and listen to you. Three generations of diseae talk to us what does terminal disease mean why they love the profession. How we can help. Share this page.

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Dec 07, In 21st century America, terminal illness does not mean quite the same thing it meant even 20 years ago. In , 64 percent of all Americans who received a cancer diagnosis survived at least 5 years, and 15 percent survived for 20 years or more. Jan 19, Six years later,apart from three monthly blood tests, I have needed no treatment. When they say it is incurable it means that it can be managed it doesnt mean its terminal. Why dont you ask the consultants exactly what they mean or make an appointment with your GP and ask them to explain it to you, mine did and he was excellent.

Terminal illness or end-stage disease is a disease that cannot be cured or adequately treated and is reasonably expected to result in the death of the patient.

This term is more commonly used for progressive diseases such as cancer or advanced heart disease than for trauma. In popular use, it indicates a disease that will progress until death with near absolute certainty, regardless of treatment. A patient who has such an illness may be referred to as a terminal patient , terminally ill or simply as being terminal.

There is no standardized life expectancy for a patient to be considered terminal, although it is generally months or less. Life expectancy for terminal patients is a rough estimate given by the physician based on previous data and does not always reflect true longevity.

Terminal patients have options for disease management after diagnosis. Examples include caregiving , continued treatment, hospice care , and physician-assisted suicide. Decisions regarding management are made by the patient and his or her family, although medical professionals may give recommendations or more about the services available to terminal patients.

Lifestyle after diagnosis varies depending largely on management decisions and also the nature of the disease, and there may be living restrictions depending on the condition of the patient. Oftentimes, terminal patients may experience depression or anxiety associated with oncoming death, and family and caregivers may struggle with psychological burdens as well.

Psycho-therapeutic interventions may help alleviate some of these burdens, and is often incorporated in palliative care. Because terminal patients are aware of their oncoming deaths, they have more time to prepare advance care planning, such as advance directives and living wills, which have been shown to improve end-of-life care.

While death cannot be avoided, patients can still strive to die a good death. By definition, there is not a cure or adequate treatment for terminal illnesses. However, some kinds of medical treatments may be appropriate anyway, such as treatment to reduce pain or ease breathing. Some terminally ill patients stop all debilitating treatments to reduce unwanted side effects. Others continue aggressive treatment in the hope of an unexpected success.

Still, others reject conventional medical treatment and pursue unproven treatments such as radical dietary modifications. Patients' choices about different treatments may change over time. Palliative care is normally offered to terminally ill patients, regardless of their overall disease management style, if it seems likely to help manage symptoms such as pain and improve quality of life.

Hospice care , which can be provided at home or in a long-term care facility, additionally provides emotional and spiritual support for the patient and loved ones.

Some complementary approaches, such as relaxation therapy , massage , and acupuncture may relieve some symptoms and other causes of suffering.

Terminal patients often need a caregiver , who could be a nurse , licensed practical nurse or a family member. Caregivers can help patients receive medications to reduce pain and control symptoms of nausea or vomiting. They can also assist the individual with daily living activities and movement. Caregivers provide assistance with food and psychological support and ensure that the individual is comfortable.

The patient's family may have questions and most caregivers can provide information to help ease the mind. Doctors generally do not provide estimates for fear of instilling false hopes or obliterate an individual's hope. In most cases, the caregiver works along with physicians and follows professional instructions. Caregivers may call the physician or a nurse if the individual:. Most caregivers become the patient's listeners and let the individual express fears and concerns without judgment.

Caregivers reassure the patient and honor all advance directives. Caregivers respect the individual's need for privacy and usually hold all information confidential. Palliative care focuses on addressing patients' needs after disease diagnosis.

While palliative care is not disease treatment, it addresses patients' physical needs, such as pain management, offers emotional support, caring for the patient psychologically and spiritually, and helps patients build support systems that can help them get through difficult times.

Palliative care can also help patients make decisions and come to understand what they want regarding their treatment goals and quality of life. Palliative care is an attempt to improve patients' quality-of-life and comfort, and also provide support for family members and carers.

However, needs for palliative care are often unmet whether due to lack of government support and also possible stigma associated with palliative care.

For these reasons, the World Health Assembly recommends development of palliative care in health care systems. Palliative care and hospice care are often confused, and they have similar goals. However, hospice care is specifically for terminal patients while palliative care is more general and offered to patients who are not necessarily terminal. While hospitals focus on treating the disease, hospices focus on improving patient quality-of-life until death. A common misconception is that hospice care hastens death because patients "give up" fighting the disease.

However, patients in hospice care often live the same length of time as patients in the hospital. A study of liver cancer patients found that patients who received hospice care, and those who did not, survived for the same amount of time. In fact, a study of adult lung cancer patients showed that patients who received hospice care actually survived longer than those who did not. Additionally, in both of these studies, patients receiving hospice care had significantly lower healthcare expenditures.

Hospice care allows patients to spend more time with family and friends. Since patients are in the company of other hospice patients, they have an additional support network and can learn to cope together.

Hospice patients are also able to live at peace away from a hospital setting; they may live at home with a hospice provider or at an inpatient hospice facility. Terminal patients experiencing pain, especially cancer-related pain, are often prescribed opioids to relieve suffering. The specific medication prescribed, however, will differ depending on severity of pain and disease status. There exist inequities in availability of opioids to terminal patients, especially in countries where opioid access is limited.

A common symptom that many terminal patients experience is dyspnea , or difficulty with breathing. To ease this symptom, doctors may also prescribe opioids to patients. Some studies suggest that oral opioids may help with breathlessness. However, due to lack of consistent reliable evidence, it is currently unclear whether they truly work for this purpose.

Depending on the patient's condition, other medications will be prescribed accordingly. For example, if patients develop depression, antidepressants will be prescribed. Anti-inflammation and anti-nausea medications may also be prescribed. Some terminal patients opt to continue extensive treatments in hope of a miracle cure, whether by participating in experimental treatments and clinical trials or seeking more intense treatment for the disease. Rather than to "give up fighting," patients spend thousands more dollars to try to prolong life by a few more months.

What these patients often do give up, however, is quality of life at the end of life by undergoing intense and often uncomfortable treatment. A meta-analysis of 34 studies including 11, patients from 11 countries found that less than half of all terminal patients correctly understood their disease prognosis , or the course of their disease and likeliness of survival.

This could influence patients to pursue unnecessary treatment for the disease due to unrealistic expectations. For patients with end stage kidney failure, studies have shown that transplants increase the quality of life and decreases mortality in this population.

In order to be placed on the organ transplant list, patients are referred and assessed based on criteria that ranges from current comorbidities to potential for organ rejection post transplant. Initial screening measures include: blood tests, pregnancy tests, serologic tests, urinalysis, drug screening, imaging, and physical exams. For patients who are interested in liver transplantation, only patients with acute liver failure have the highest priority over patients with only cirrhosis.

Physician-assisted suicide PAS is a highly controversial concept, only legal in a few countries. In PAS, physicians, with voluntary written and verbal consent from the patient, give patients the means to die, usually through lethal drugs. Reasons as to why patients choose PAS differ. Factors that may play into a patient's decision include future disability and suffering, lack of control over death, impact on family, healthcare costs, insurance coverage, personal beliefs, religious beliefs, and much more.

PAS may be referred to in many different ways, such as aid in dying, assisted dying, death with dignity, and many more. These often depend on the organization and the stance they take on the issue. In this section of the article, it will be referred to as PAS for the sake of consistency with the pre-existing Wikipedia page: Assisted Suicide.

In the United States, PAS or medical aid in dying is legal in select states, including Oregon, Washington, Montana, Vermont, and New Mexico, and there are groups both in favor of and against legalization.

Some groups favor PAS because they do not believe they will have control over their pain, because they believe they will be a burden on their family, and because they do not want to lose autonomy and control over their own lives among other reasons. They believe that allowing PAS is an act of compassion.

While some groups believe in personal choice over death, others raise concerns regarding insurance policies and potential for abuse. According to Sulmasy et al. Again, there are also arguments that there are enough protections in the law that the slippery slope is avoided. For example, the Death with Dignity Act in Oregon includes waiting periods, multiple requests for lethal drugs, a psychiatric evaluation in the case of possible depression influencing decisions, and the patient personally swallowing the pills to ensure voluntary decision.

Physicians and medical professionals also have disagreeing views on PAS. The ACP's argument concerns the nature of the doctor-patient relationship and the tenets of the medical profession. They state that instead of using PAS to control death: "through high-quality care, effective communication, compassionate support, and the right resources, physicians can help patients control many aspects of how they live out life's last chapter.

In many cases, the argument on PAS is also tied to proper palliative care. The International Association for Hospice and Palliative Care issued a position statement arguing against considering legalizing PAS unless comprehensive palliative care systems in the country were in place.

It could be argued that with proper palliative care, the patient would experience fewer intolerable symptoms, physical or emotional, and would not choose death over these symptoms. Palliative care would also ensure that patients receive proper information about their disease prognosis as not to make decisions about PAS without complete and careful consideration. Many aspects of medical care are different for terminal patients compared to patients in the hospital for other reasons.

Doctorpatient relationship are crucial in any medical setting, and especially so for terminal patients. There must be an inherent trust in the doctor to provide the best possible care for the patient. While terminal condition prognosis is often a grave matter, doctors do not wish to quash all hope, for it could unnecessarily harm the patient's mental state and have unintended consequences.

However, being overly optimistic about outcomes can leave patients and families devastated when negative results arise, as is often the case with terminal illness. Often, a patient is considered terminally ill when his or her estimated life expectancy is six months or less, under the assumption that the disease will run its normal course based on previous data from other patients.

The six-month standard is arbitrary, and best available estimates of longevity may be incorrect. Though a given patient may properly be considered terminal, this is not a guarantee that the patient will die within six months.

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